We aim to advance our understandings of the genetics of Dilated Cardiomyopathy (DCM) by gathering a much larger number of DCM families for study. The DCM Consortium was created as a new initiative of the DCM Research Project to achieve this purpose. Expanded by Dr. Ray Hershberger from 2012 to 2014 at The Ohio State University, the DCM Consortium successfully competed in early 2015 for National Institute of Health (NIH) support for the Precision Medicine Study , which completed the enrollment of more than 3000 participants April 1, 2021.
The goal of this website is to provide relevant information about the genetics of DCM in families while serving all study participants from the DCM Discovery and DCM Precision Medicine studies. We also inform health care professionals with our recommendations to manage genetic DCM and provide an update on DCM research.
FAMILIES IN THE PRECISION MEDICINE STUDY.
Families who participate in the Precision Medicine Study are those enrolled at collaborating sites in the DCM Consortium. Some of you may need access to a communication tool entitled “Family Heart Talk.” If you were given a password, please visit the Study Materials section for this and other study documents.
FAMILIES IN THE DCM DISCOVERY STUDY.
We continue working with all of the DCM families who have previously participated with us in the Familial Dilated Cardiomyopathy (FDC) Project and FDC Study, now named the DCM Discovery Study. We also welcome new patients and family members with DCM who are unable to participate in the Precision Medicine study. Patients and providers: please contact us if you are interested in participating, would like to refer a family, or if you have any questions.