Newsletters
Scan Our Newsletter Archive for DCM Topics of Interest
DCM Beat
Newsletters of the DCM Research Project
Newsletters are mailed directly to all participants. If you wish to be added to our mailing list, please contact us.
August 2023
TOPICS: Inconclusive Genetic Results, DCM Portal, Participant Spotlight
June 2023
TOPICS: Participant Engagement, DCM Portal, Participant Spotlight, and more!
February 2023
TOPICS: DCM Portal, Family History and Health Information, NIH Update, CMR Update, Participant Spotlight
October 2022
TOPICS: DCM Project Portal, NIH Grant Update, CMR Study, Participant Spotlight
July 2022
TOPICS: Another NIH grant to be submitted; Precision Medicine CMR Study; Participant Highlight; Major Study Published.
April 2022
TOPICS: Combined Newsletter for All Studies of the DCM Research Project; Participant Highlight; Key Results from the DCM Precision Medicine Study Published
November 2021
TOPICS: DCM Research Project Studies Continue; DCM Project 'Results Reveal' Webinar Summary; Planning for 'Precision Medicine II'
JUNE 2021
TOPICS: 'Results Reveal' Webinar Reminder; Genetic Testing and Recommendations at a Glance; Project Updates
MARCH 2021
TOPICS: 'Results Reveal' Webinar Announcement; DCM and Diverse Populations; CMR Ancillary Study; Project Updates
December 2020
TOPICS: Research moving forward during COVID-19; Preparing for future studies; Life & Family Survey
July 2020
TOPICS: Safety Top Priority; Future Studies; Updating Contact Info
May 2020
TOPICS: COVID-19 Impacts DCM Research Project; Announcements of New and Future Studies
February 2020
TOPICS: Importance of Enrolling Families in the DCM Research Project; Participant Spotlight; Study Updates.
November 2019
TOPICS: Making Diversity a Priority in the DCM Precision Medicine Study; Research Study Participant Highlight; Project Updates.
July 2019
TOPICS: History of the DCM Research Project; Research Study Participant Highlight; Project Updates
February 2019
TOPICS: Uncertain Genetic Results; Why Family Members Should Enroll
November 2018
TOPICS: Genetic Variants; Study Enrollment Progress
December 2016
TOPICS: DCM Research Study Announces Major Expansion
April 2014
TOPICS: Genetic Counseling for DCM; Staff Updates
August 2013
TOPICS: Titin Genetic Testing; New Study Name; Staff Updates
March 2013
TOPICS: The FDC Research Project Has Moved to The Ohio State University; Staff Updates
March 2012
TOPICS: How Does Participation in the FDC Study Work?
July 2010
TOPICS: Gene Discovery Projects in the FDC Project; Staff Updates
March 2010
TOPICS: Different Types of Cardiomyopathy in One Family; Collecting Heart Tissue Samples
December 2009
TOPICS: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy
July 2009
TOPICS: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work
March 2009
TOPICS: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants
November 2008
TOPICS: The Genetic Information Nondiscrimination Act (GINA): Federal Law Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction
July 2008
TOPICS: The FDC Project Has Discovered a Genetic Change in My Family. What Now?
March 2008
TOPICS: The FDC Research Team Prepares for Screening Trips; Personnel Introductions
September 2007
TOPICS: The FDC Research Moves to the University of Miami
December 2006
TOPICS: The Familial Dilated Cardiomyopathy Project 2006
May/June 2006
TOPICS: FDC Research Participation vs. Clinical Genetic Testing
December 2005
TOPICS: The Familial Dilated Cardiomyopathy Project 2005
August 2004
TOPICS: Finding the Gene in an FDC Family
March 2004
TOPICS: Causes of Dilated Cardiomyopathy
September 2003
TOPICS: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).
February 2003
TOPICS: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.
August 2002
TOPICS: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.
February 2002
TOPICS: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.
November 2001
TOPICS: Review of genetic test results regulations; recent OHSU research presentations.
January 2001
TOPICS: Creating your family medical history : how-to and resources.
October 2000
TOPICS: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.
June 2000
TOPICS: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.
January 2000
TOPICS: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.