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Newsletters of the DCM Research Project
Newsletters are mailed directly to all participants. If you wish to be added to our mailing list, please contact us.
TOPICS: 'Results Reveal' Webinar Reminder; Genetic Testing and Recommendations at a Glance; Project Updates
TOPICS: 'Results Reveal' Webinar Announcement; DCM and Diverse Populations; CMR Ancillary Study; Project Updates
TOPICS: Research moving forward during COVID-19; Preparing for future studies; Life & Family Survey
TOPICS: Importance of Enrolling Families in the DCM Research Project; Participant Spotlight; Study Updates.
TOPICS: Making Diversity a Priority in the DCM Precision Medicine Study; Research Study Participant Highlight; Project Updates.
TOPICS: History of the DCM Research Project; Research Study Participant Highlight; Project Updates
TOPICS: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy
TOPICS: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work
TOPICS: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants
TOPICS: The Genetic Information Nondiscrimination Act (GINA): Federal Law Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction
TOPICS: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).
TOPICS: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.
TOPICS: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.
TOPICS: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.
TOPICS: Review of genetic test results regulations; recent OHSU research presentations.
TOPICS: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.
TOPICS: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.
TOPICS: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.