Scan Our Newsletter Archive for DCM Topics of Interest
Newsletters of the DCM Research Project
Newsletters are mailed directly to all participants. If you wish to be added to our mailing list, please contact us.
TOPICS: Importance of Enrolling Families in the DCM Research Project; Participant Spotlight; Study Updates.
TOPICS: Making Diversity a Priority in the DCM Precision Medicine Study; Research Study Participant Highlight; Project Updates.
TOPICS: History of the DCM Research Project; Research Study Participant Highlight; Project Updates
TOPICS: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy
TOPICS: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work
TOPICS: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants
TOPICS: The Genetic Information Nondiscrimination Act (GINA): Federal Law Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction
TOPICS: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).
TOPICS: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.
TOPICS: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.
TOPICS: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.
TOPICS: Review of genetic test results regulations; recent OHSU research presentations.
TOPICS: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.
TOPICS: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.
TOPICS: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.