Scan Our Newsletter Archive for DCM Topics of Interest

DCM Beat

Newsletters of the DCM Research Project

Newsletters are mailed directly to all participants. If you wish to be added to our mailing list, please contact us.

January 2024

TOPICS: Importance of Heart Checks, DCM Portal, Participant Spotlight, and more!

August 2023

TOPICS: Inconclusive Genetic Results, DCM Portal, Participant Spotlight

June 2023

TOPICS: Participant Engagement, DCM Portal, Participant Spotlight, and more!

February 2023

TOPICS: DCM Portal, Family History and Health Information, NIH Update, CMR Update, Participant Spotlight

October 2022

TOPICS: DCM Project Portal, NIH Grant Update, CMR Study, Participant Spotlight

July 2022

TOPICS: Another NIH grant to be submitted; Precision Medicine CMR Study; Participant Highlight; Major Study Published.

April 2022

TOPICS: Combined Newsletter for All Studies of the DCM Research Project; Participant Highlight; Key Results from the DCM Precision Medicine Study Published

November 2021

TOPICS: DCM Research Project Studies Continue; DCM Project 'Results Reveal' Webinar Summary; Planning for 'Precision Medicine II'

JUNE 2021

TOPICS: 'Results Reveal' Webinar Reminder; Genetic Testing and Recommendations at a Glance; Project Updates

MARCH 2021

TOPICS: 'Results Reveal' Webinar Announcement; DCM and Diverse Populations; CMR Ancillary Study; Project Updates

December 2020

TOPICS: Research moving forward during COVID-19; Preparing for future studies; Life & Family Survey

July 2020

TOPICS: Safety Top Priority; Future Studies; Updating Contact Info

May 2020

TOPICS: COVID-19 Impacts DCM Research Project; Announcements of New and Future Studies

February 2020

TOPICS: Importance of Enrolling Families in the DCM Research Project; Participant Spotlight; Study Updates.

November 2019

TOPICS: Making Diversity a Priority in the DCM Precision Medicine Study; Research Study Participant Highlight; Project Updates.

July 2019

TOPICS: History of the DCM Research Project; Research Study Participant Highlight; Project Updates

February 2019

TOPICS: Uncertain Genetic Results; Why Family Members Should Enroll

November 2018

TOPICS: Genetic Variants; Study Enrollment Progress

December 2016

TOPICS: DCM Research Study Announces Major Expansion

April 2014

TOPICS: Genetic Counseling for DCM; Staff Updates

August 2013

TOPICS: Titin Genetic Testing; New Study Name; Staff Updates

March 2013

TOPICS: The FDC Research Project Has Moved to The Ohio State University; Staff Updates

March 2012

TOPICS: How Does Participation in the FDC Study Work?

July 2010

TOPICS: Gene Discovery Projects in the FDC Project; Staff Updates

March 2010

TOPICS: Different Types of Cardiomyopathy in One Family; Collecting Heart Tissue Samples

December 2009

TOPICS: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy

July 2009

TOPICS: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work

March 2009

TOPICS: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants

November 2008

TOPICS: The Genetic Information Nondiscrimination Act (GINA): Federal Law Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction

July 2008

TOPICS: The FDC Project Has Discovered a Genetic Change in My Family. What Now?

March 2008

TOPICS: The FDC Research Team Prepares for Screening Trips; Personnel Introductions

September 2007

TOPICS: The FDC Research Moves to the University of Miami

December 2006

TOPICS: The Familial Dilated Cardiomyopathy Project 2006

May/June 2006

TOPICS: FDC Research Participation vs. Clinical Genetic Testing

December 2005

TOPICS: The Familial Dilated Cardiomyopathy Project 2005

August 2004

TOPICS: Finding the Gene in an FDC Family

March 2004

TOPICS: Causes of Dilated Cardiomyopathy

September 2003

TOPICS: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).

February 2003

TOPICS: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.

August 2002

TOPICS: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.

February 2002

TOPICS: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.

November 2001

TOPICS: Review of genetic test results regulations; recent OHSU research presentations.

January 2001

TOPICS: Creating your family medical history : how-to and resources.

October 2000

TOPICS: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.

June 2000

TOPICS: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.

January 2000

TOPICS: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.